For the past 4 years, my sister, Angie, has been a nanny to 3 kids whose mother was diagnosed with ALS, commonly known as Lou Gehrig’s disease. Most ALS patients only live 2 to 5 years after being diagnosed. Claire fought it for 5 years. She passed away in May of this year. Claire was a big personality. She made appearances in Congress and on national tv and passionately raised awareness and funds for ALS research.
Over the last few years I've had the opportunity to get a glimpse into the journey of this family and the friends that are like family to them.
Cocktails and hors d’oeuvres were served as the guests mingled to the soft sounds of yuletide carols. These were Claire’s friends and Claire’s family that had gathered on this evening. Although I have met many of these folks over the past few years, I was an observer more than an insider.
They shared stories and memories of Claire from childhood, through the years, and even of her funeral. I never knew Claire without her wheelchair and her tracheal tube. They did. They knew her as a young girl, a sister who confided her secrets, a teenager who got in trouble, a college student who was a little crazy, a bride who was in love, a mom who needed a night out, and they all knew her as their cherished friend.
I witnessed the tangible influence of one life as she had given and it had multiplied.
It was a beautiful reminder up close and in my face that life matters and what we give to others today will extend beyond our own limitations.
2 comments:
That was great... captured the evening, and the one we miss perfectly. :)
Christina...WOW!! That was great! You really captured the night! That just made my day! We were all brought together by Claire's amazing sprit and love of life. I'll have friendships now that will last a lifetime because of her! Thanks again!!
"A friend of Claire"...Nora
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